Posted on Jul 15, 2016
Diagnosed with rare lifelong disease, narcolepsy. Best recourse for tactfully managing command team?
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To be brief.
I've been diagnosed with extremely severe narcolepsy. Sleep attacks, hallucinations (rem intrusions), excessive daytime fatigue, and the ever funny Cataplexy.Meds I need that work Tricare won't pay for and I've been on conleave until I'm balanced. Yet today I find out my commander spoke to a provider i've never met who said he'd change my profile and remove conleave.(More info below
I've been diagnosed with extremely severe narcolepsy. Sleep attacks, hallucinations (rem intrusions), excessive daytime fatigue, and the ever funny Cataplexy.Meds I need that work Tricare won't pay for and I've been on conleave until I'm balanced. Yet today I find out my commander spoke to a provider i've never met who said he'd change my profile and remove conleave.(More info below
Medicine
Sleeping
Edited >1 y ago
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Responses: 2
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Essentially with the diagnoses Ive accepted my desires of going for the full run of 20 are over.MEB is already inniated and I can't drive. Frustrated with a command team that has already given me UCMJ for the disease and now won't just let me walk out the door.
So what would be my best options in handling an issue like this while attempting to maintain the rank i've earned until the I can the end.
So what would be my best options in handling an issue like this while attempting to maintain the rank i've earned until the I can the end.
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CSM Richard StCyr
Were you involved in any IED incidents and if so, have you been screened for TBI? I was having similar symptoms and it turned out not to be narcolepsy but undiagnosed TBI and PTSD.
Once the diagnosis changed to TBI and PTSD the CoC helped me finish my 30 yrs and ended my career on a very positive note. (Don't know why it made a difference but thankfully to them for some reason it did)
Once the diagnosis changed to TBI and PTSD the CoC helped me finish my 30 yrs and ended my career on a very positive note. (Don't know why it made a difference but thankfully to them for some reason it did)
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SPC James Harsh
Roughshot advice would be to work on making sure you have medical documentation in order, transitioning out will leave you out in the cold so I would seek the VA since the clock is ticking. Probably want some representation for your transistion to exit such as legal and that may help with concerns of rank.
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SPC (Join to see)
SGM Erik Marquez - To clarify. UCMJ for failure to report because of waking up. ThenUCMJ came in month 9 of attempting to get treatment and diagnosed j was finnaly diagnosed by mlst 2 weeks after. Pertinent medical history regarding the issue was not reviewed when I presented it. Extra duty, money, and suspended rank. That's water under the bridge, it happened, it's over, but it's the day I lost complete trust and confidence in the decision making if this unit leadership.
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SPC (Join to see)
CSM Richard StCyr - If you're having on going issues CSM check your records. Army tri care sleep studies usually last only 6 hrs as well as not including mslt. On my
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I'd recommend using your NCO support channel, letting your squad leader know what's going on, and see if there's anything that they can do. Based off of their response, you may need to go higher, but jumping your chain of command even when your CO pulls something like this is the wrong answer. If recommend getting your primary care in on this too, and whatever specialists you've seen, because they're the ones who will make any medical decisions for you.
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SPC (Join to see)
SGT (Join to see) appreciate the response and guidance. My immediate NCO support channel have been nothing but supportive during this period. Working in a hospital my commander is breaking any regulation pulling the conleave because ... well she can. Im just at a loss on how to help them understand how serious my situation is all while relearning how to .. well ...function.
again though thank you for the input. I'm not looking to go off the walls jumping chains just hoping others out here have some experience with this disease and what to do.
again though thank you for the input. I'm not looking to go off the walls jumping chains just hoping others out here have some experience with this disease and what to do.
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SSG Roger Ayscue
SPC (Join to see) - GO TO THE I.G. With your UCMJ AND your Medical Records. If what you have said is all true, AND they have already initiated the MEB/MRB, then you might consider calling your Congressman.
As a Career Soldier, I hate to play Barracks Lawyer, and I don't want to seem disloyal, but to me, again assuming that you are telling the truth, your unit is hosing you. You need to take care of YOU for the sake of your family. After you are out, Big Army will not give a Rats Ass about you and if you forget to check a box, the VA will just hand you a popcorn fart.
Start with the I.G., If that does not work, Call your Congressman. At Fort Bragg there was one thing that struck fear into the hearts of Jack-leg commanders everywhere..."6-BOSS" That was the phone number to the XVIII Airborne Corps Commanding General's Action Line...396-B-O-S-S. A 6-BOSS call gave your CO 12 hours to respond to the man with Stars on his collar why he was being a jackass. On the flip side, if the call was UNFOUNDED, life was not pleasant for the caller.
Good luck to you
As a Career Soldier, I hate to play Barracks Lawyer, and I don't want to seem disloyal, but to me, again assuming that you are telling the truth, your unit is hosing you. You need to take care of YOU for the sake of your family. After you are out, Big Army will not give a Rats Ass about you and if you forget to check a box, the VA will just hand you a popcorn fart.
Start with the I.G., If that does not work, Call your Congressman. At Fort Bragg there was one thing that struck fear into the hearts of Jack-leg commanders everywhere..."6-BOSS" That was the phone number to the XVIII Airborne Corps Commanding General's Action Line...396-B-O-S-S. A 6-BOSS call gave your CO 12 hours to respond to the man with Stars on his collar why he was being a jackass. On the flip side, if the call was UNFOUNDED, life was not pleasant for the caller.
Good luck to you
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