Has anyone raised a child with cystic fibrosis while still in the military?

We recently found out through genetic testing that future child will have cystic fibrosis. My CFTR mutation is super rare and wan’t even picked up on the initial screening so there’s a slim chance that it’s a non-symptom producing mutation, but we’re preparing to raise a child with CF. I know that he’ll need some specialized care that most military hospitals aren’t equipped to provide. Clinical practice guidelines for CF recommend checkups from a CF care center at least 4 times per year and they’re are only 4 or so posts that have them (JBSA, JBLM, WR, and NMCSD). We’ve been in contact with the EFMP program at the post I’m PCSing to and we’ll be able to use the CF center in Denver for quarterly checkups. If you’ve raised a child with CF while in the military I’m interested to hear your take. Were you able to receive high quality care for you child even though you aren’t in close proximity to a CF center? For long term healthcare should we try to end up living somewhere that has a CF center pretty much within the city or is being within a 1-2 hour drive of one sufficient?