Dad Of Baby Born Without Skull Opens Up After Son's Story Goes Viral. Your thoughts about this?

SGT Private RallyPoint Member — Thu, 08 Oct 2015 17:25:23 -0400

"He has already touched so many lives, and we could not be more proud."
After reading this story about this remarkable mother and dad, and how they are as proud of their baby Jaxon as any parent would be. I wondered what if that was my child? How would I handle this? How would I react to public scrutiny about how my baby feels? Would I go viral about my baby's condition and why I feel the way I do? I'll never know, but I would hope I would be as courageous as these parents are.

Florida dad Brandon Buell knows the hardship and joy that come with raising a child with severe disabilities. His toddler son Jaxon was born with part of his skull and brain missing due to a rare condition called microhydranencephaly, but the resilient little guy has been inspiring people all around the world through his Facebook page, Jaxon Strong.

"In the first three weeks of Jaxon's life, when we were still with him in the NICU and there was so much uncertainty, the doctors would continuously prepare us for worst and to get ready to take Jaxon home simply for 'comfort care,'" Buell told The Huffington Post.

http://www.huffingtonpost.com/entry/dad-opens-up-after-miraculous-son-who-was-born-without-much-of-his-skull-goes-viral-jaxon-strong_560ada2ae4b0768126ff630c?cps=gravity_5059_ [login to see] 26205684

Dad Of Baby Born Without Skull Opens Up After Son's Story Goes Viral

"He has already touched so many lives, and we could not be more proud."

Response by LTC Stephen F. made Oct 8 at 2015 5:32 PM

LTC Stephen F. — Thu, 08 Oct 2015 17:32:22 -0400

Amazing story, thanks for sharing SGT Private RallyPoint Member.
Those blue gray eyes seem to be very penetrating. I hope as the young boy grows that he will have help from surgeons and that God will bless that boy and his family with an outpouring of love and human acceptance.

Response by Capt Seid Waddell made Oct 8 at 2015 5:35 PM

Capt Seid Waddell — Thu, 08 Oct 2015 17:35:09 -0400

Difficult situation met with great courage. Great story, thanks for posting it!

Response by Sgt Kelli Mays made Oct 8 at 2015 7:12 PM

Sgt Kelli Mays — Thu, 08 Oct 2015 19:12:11 -0400

WOW! Incredible! I hope the little guy does well.

Response by SFC Private RallyPoint Member made Oct 9 at 2015 2:04 AM

SFC Private RallyPoint Member — Fri, 09 Oct 2015 02:04:27 -0400

Amazing story, and I will pray daily that this little guy lives a long and happy life.

Response by SrA Art Siatkowsky made Oct 9 at 2015 2:10 AM

SrA Art Siatkowsky — Fri, 09 Oct 2015 02:10:16 -0400

Hopefully they can 3rd print a skull for this little guy. They have been using 3rd printers to replace birth defect body parts for some time now.

Response by PO3 Private RallyPoint Member made Oct 9 at 2015 1:02 PM

PO3 Private RallyPoint Member — Fri, 09 Oct 2015 13:02:03 -0400

This is such a touching story!

Response by PO3 Private RallyPoint Member made Oct 9 at 2015 1:04 PM

PO3 Private RallyPoint Member — Fri, 09 Oct 2015 13:04:07 -0400

Don't mean to throw a wrench ... would you had aborted him?

Response by SFC Mark Merino made Oct 9 at 2015 1:12 PM

SFC Mark Merino — Fri, 09 Oct 2015 13:12:16 -0400

The human body is an incredible creation. I was in the WTB (where you go to heal if it takes more than 6 months)with a trooper who was missing such a large channel of his brain (small arms?) that it looked like you could lay your arm in his skull. He was walking around under his own power. Medical science has come so far that this little angel will be living a good life in no time. The one thing we need to work on is our ability to belittle and bully others. I'm not even going to speak of those who torture and murder for having belief in Christianity. They deserve no comment.